The past week has been hard. We had been planning a trip to UTMB for Molly’s surgery in hopes of relieving some of her tone issues and to give her more comfort. As last week progressed, Molly started hurting more, having more seizures, and her tone increased. We have been adjusting, changing and adding medications, but have been unable to make her better. We have a team of wonderful doctors, but Molly continues to show us who is the boss, and it is not us. By Sunday night it was obvious how bad her tone had become. She is no longer able to tolerate anything in her g-button without it leaking out. This morning, we decided, along with our doctors, that it was time to start hospice care for our beautiful angel. We know that, with their help, we will be able to get her pain under control.
We are so thankful for all the wonderful doctors that have spent hours with us, and for all the therapist that have made this past year bearable, all whom have become close friends. We have met so many amazing special need families that live a life that no one on the outside can ever imagine. We have been shown so much kindness from friends and family. I know that we could not have survived without all the support and encouragement. I thank God for all these things.
We will update everyone when things change and about arrangements, once it is time. Please continue to pray for Molly to be out of pain, for Brighton during this time and for Kelly and I.
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My prayers are intensified for Molly's comfort, for you, Kelly and Brighton. I pray for your strength, for your comfort, and for peace in this time of unimaginable stress and crisis. I love you!
ReplyDeleteShe is so sweet! Praying for all of you!
ReplyDeletethinking of you. PRaying for you.
ReplyDeleteMay God's peace that passes understanding be guarding your hearts and minds right now.
ReplyDeletePraying for Molly's comfort until she is able to rest in the arms of her Creator.
Teresa, my heart aches for you. Molly is a sweet, sweet soul. I'm praying for all of you and that God will give you strength and comfort.
ReplyDeleteJanet
Do not worry sweet strong Theresa and Kelly. God has prepared us all a room. Molly is going to run and eat candy in His Kingdom. I have always prayed for you, I will continue to pray for Molly peace and strength on her journey Home. I love you!
ReplyDeletePraying for comfort and peace to surround you during this time~
ReplyDeleteBlessings,
Lindsey & Josh Hartz
Praying for your baby girl and you, as her parents, as you go through this.
ReplyDeleteI have no words...Praying for you and sweet Molly. May you feel Him so close that His breath is on your cheek.
ReplyDeleteHi, found you through Lindsey Hartz. Your sweet baby girl is precious. I pray that you will enjoy your time with her during this journey, hard though it may be. Many blessings to you.
ReplyDeleteLindsey Hartz directed me here also. Please know that there are many people you have not even met that are praying for your entire family during this time. You are all loved dearly by our Heavenly Father.
ReplyDelete