I have said this before, and I will say it again - I hate going to the doctor.
Today we saw the pediatric neurologist. All the neuro guys are weird to start with and that is still true. He is very nice, but different. We reviewed the EEG results from Tuesday and it was another heartbreaking visit. We were sent to the neuro man due to repeat startling that just seems to be getting worse. Her EEG shows slow activity (consistent with a major brain injury) and very chaotic, high-voltage pattern when she is sleeping. We have to go back on Monday for another longer study just to confirm, but he is 99% sure that she has a disorder called Infintile spasms. The outlook is of course bad - as with everything, and the treatment options are few. There are only two drugs that are effective and one has a 40% chance of causing blindness - which the doctor was quick to point out would not be an issue since she is already blind. I could have come across the room and kicked him for that comment, but I also understand that he does not have the same hope that we do. The hope that she will regain some of her vision.
We continue to hope for the best and pray for that miracle. Molly is still the most beautiful baby around and our job is to make sure that she gets all the love and care that we can give.